Someone once said that the days are long but the years are short. I am nearly five years into this parenting journey and I understand what they mean now.
Bethany is just one month off her third birthday. She has changed so much this year. She’s really not a baby anymore but is still a gorgeous little girl.
In many ways, Bethany is just like any other child. She runs, climbs, laughs, smiles, screams etc. But Bethany has her own particular challenges. She doesn’t talk, except for the word “mama” or vowel sounds. We are still unsure whether this is related to her palate (she has had two surgeries already for cleft lip and palate) or whether her communication issues are more special needs based.
Bethany has developmental delays, mainly in communication, but she also displays some autistic style behaviour: spinning, hand flapping, severe tantrums. She has no fear of danger and also has sensory processing issues.
Covid19 has not helped as far as getting her the help she needs. In mid summer we began attending video link therapy sessions. The number of professionals involved increased in August and I’m feeling generally more supported, although I tend to have a lot of appointments which can mean that not much gets done at home.
We have recently been transferred the the special needs speech and language therapy team. I am hoping we will be able to have in person therapy soon as it is hard to engage Bethany through video link.
It is increasingly clear that we made the right decision to put Lucy into school this year rather than the original plan of homeschooling. She is settled and flourishing.
Friends who pray, please pray for us as we navigate the special needs world. I am hopeful that Bethany’s issue is just her palate but from her behaviour it seems maybe not.
If it is her palate we will have another surgery to (not) look forward to.
Thanks for reading.
Jenni